Thursday, October 13, 2011
Ellie 10/12/11
So Ellie had her eye appt yesterday and it went great! He was very happy with how much her hemangioma had gone down and said no surgery for now! YAY! We will just continue on her meds and eye drops and hope they continue to work. She will go back to the heart Dr next week for yet another EKG and heart ultasound. Hopefully that one goes good too.
Tuesday, October 11, 2011
Ellie update
lets try this blog thing again...
Ellie was in the hospital last week for her eye. The hemangioma was not responding to the heart meds so they decided to hospitalize her and up the meds drastically to try and get a response. She was in from Tuesday morning to Friday night. They up'ed her meds fast and she had to be hooked up to oxygen and heart monitors 24/7. She was such a trooper. they had a really hard time getting her IV placed. it took about 7 tried but they finally got it in and then never had to use it. But we are thankful for that because it was only placed to give her meds if her heart stopped beating. We went home with a 24 hour monitor on and Saturday night was her first night without wires! she was a happy girl. They also put her back on her eye drops to see if they can attack the hemangioma externally and internally. She has stayed on the same dose of her meds this week and seems to be doing just fine. She has an Eye appt tomorrow to check her vision and see if the hemangioma has reduced at all. Fingers crossed! Will update with new news.
Ellie was in the hospital last week for her eye. The hemangioma was not responding to the heart meds so they decided to hospitalize her and up the meds drastically to try and get a response. She was in from Tuesday morning to Friday night. They up'ed her meds fast and she had to be hooked up to oxygen and heart monitors 24/7. She was such a trooper. they had a really hard time getting her IV placed. it took about 7 tried but they finally got it in and then never had to use it. But we are thankful for that because it was only placed to give her meds if her heart stopped beating. We went home with a 24 hour monitor on and Saturday night was her first night without wires! she was a happy girl. They also put her back on her eye drops to see if they can attack the hemangioma externally and internally. She has stayed on the same dose of her meds this week and seems to be doing just fine. She has an Eye appt tomorrow to check her vision and see if the hemangioma has reduced at all. Fingers crossed! Will update with new news.
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